"There is the mud, and there is the lotus that grows out of the mud. We need the mud in order to make the lotus," Thich Nhat Hanh.

Wednesday, January 18, 2012

Tabrez is Back!

From WeHeartIt.com
Tabrez is back!

I picked up him up at the airport last night.  I had the whole butterfly thing going, it was actually pretty funny.  I ran up to T as he came out of the doors and I hugged him and didn't want to let go.  We walked to the baggage claim area hand in hand.  We were that obnoxious couple that was all kissy and huggy and lovey dovey. 

Til we realized his baggage wasn't there.

So we go ask where it is.  Chicago.  Should be here by noon tomorrow (now today).

Okay, cool, no big deal.

We head home and he freshens up and then I fed him.  Then we retreated to the bedroom.  Mmmmm yummy.

Til I started to bleed afterwards.  Not much, but I was a little concerned so I put the breaks on any further amorous behavior. 

He was up a few times during the night since he was still on India time.

We got up about two and then Tabrez tried to figure out where his luggage is.  He was told Richmond, Virginia. 

WTF?

So we drive to the airport and they confirm it--something went wrong, and his baggage was in Virginia.  Should be here tomorrow.

Ah well.

Then we picked up pizza and came home to resume watching Star Trek Voyager.

We stuffed ourselves and cuddled up on the couch.

Til we started the lovey dovey stuff again. 

We ended up back in the bedroom again and this time...no bleeding!  No increase of pain either, so I'm thinking physical therapy is helping there too!!

But then he feel asleep and has been sleeping for hours.

Stupid jetlag. 

Alex made sure immediately that Tabrez remembered that she was in charge.  She stared at him til he gave her nomz, and last night turned on the tub facet for her, and then filled her water bowl. 

I spent most of the night squished between the two of them in bed. 

It was perfect.

It's so good to have him back. 

Alex and I did fine without him around, but it's much better with him here.

Sunday, January 15, 2012

Fibro and Abdominal Pain Stuff

I'm hoping my fibro flare is finally dissipating.  Yesterday the abdominal pain was worse than the fibro, and lately that hasn't been the case.  I had pelvic PT on Wednesday so the pain from that was expected to flare.  Today I got about 14 hours of sleep, which in the past

My pelvic PT has been going really well!  I was told that it would take at least six months.  I started in November, so it's been...almost three months.  She does work internally and externally.  The best way to describe it is:  you know the knots you get in your muscles from like fibro?  I have those in my abdomen.  Then my laparotomy scar needs a lot of help.  Apparently it didn't heal very well.  I also have adhesions, which is understandable considering all the surgeries I've had and stuff.  Sometimes I have to make sure my pelvis is not tensing up, but I'm able to catch when I do and that's helping.

I started PT for my jaw last week.  On my right side, it was locking and making noises.  My fibro is definitely contributing to it.  As is my abdominal pain.  I am not amused.  I had my first jaw PT appt on Tuesday of last week.  The exercises I was told to do flared my endo that I could barely move.  I have another appt tmrw and hopefully we can find a balance between the needed exercises and not pissing off my fibro.

In other news, I have fully devoted myself to being a domestic goddess.  I won't go into much detail here, because I think it will be a BYDLS article. 

Alex is doing great.  She's been taking great care of me, sleeping on me while I rest on the couch watching Star Trek DS9.

Tabrez comes back Tuesday night and I am really excited!!  Sure I've been occupying myself with a lot of reading and Netflix, but I miss cuddling with him and talking to him and just knowing he's around. 

That's about it for now, just wanted to check in!

Tuesday, January 10, 2012

Tom Petty Tues: The Waiting

Photobucket

Tabrez comes home in a week.  Therefore, today's selection is "The Waiting" by Tom Petty and the Heartbreakers. 

Thursday, January 5, 2012

Blogging vs Fibro

I've been working on blog posts but my fibro-y fingers haven't been cooperating.  Sunday or Monday I fell into a flare and still haven't gotten out of it. 

I have all sorts of things to write about:  Leo's wake and funeral (which were beautiful), the books I've been reading, the New Year's goals I made for myself. 

T will be back in 12 days.  Ugh I have a lot to do before he gets here!  Okay not a lot lot, but enough.  Which this fibro flare is getting in the way of. 

I will be back to blog once the fingers stop hurting so much.

Thank you for your patience. 

Thursday, December 29, 2011

Thoughts on Death

The closest I've ever been to facing my own mortality was in February when I had that reaction to Savella.

The thought of my death has really never bothered me.  I actually find comfort in the fact that someday my suffering will end. And I'm trying my best to make sure I don't foul up my karma so I don't end up worse than I am now.  Without thinking, I wanted to survive that Savella disaster.  I went to the doctor and got treatment and followed the instructions given to the letter. 

When I've felt suicidal in the past, I've asked for help.  I've had a stay in the psych ward, and participated in a partial hospitalization program.  I do have a strong survival instinct. 

A quote from Star Trek II:  The Wrath of Khan keeps running through my head.  It's after Spock's death, when Kirk is visited by his son David:

David: Lieutenant Saavik was right: You never have faced death.
Kirk: No. Not like this. I haven't faced death. I've cheated death. I've tricked my way out of death and patted myself on the back for my ingenuity. I know nothing.
David: You knew enough to tell Saavik that how we face death is at least as important as how we face life.
Kirk: Just words.
David: But good words. That's where ideas begin. Maybe you should listen to them.

I remember when my Grandma K died, I was sad, but more relieved.  She had a heart attack around Thanksgiving 2002 and died before Christmas of that year.  It was hard to see her in obvious pain.  I saw what it was doing to my mom.  I cried during the funeral (which was on my brother Justin's birthday).  I eventually moved in to her place (where I am now), and it was definitely odd making it my place.  There are still some touches of my Grandma around, especially in the kitchen.  After all, that's where she'd keep the cookie dough for my brothers and me.  The last couple of years I've missed her more and more.  I brought her up at Christmas, saying that I missed her.

My dad's family has had a lot of death.  He lost his second oldest sister in a car accident soon after she was married.  His dad, my grandfather, died I think shortly after Eli was born.  Dad lost his brother when I was in grade school--I remember that but was too young to really understand.

So I've really never known death.

Not like this.

Not like I'm feeling now.

This past week I've been on edge.  I've needed anti-anxiety pills, especially as I try to fall asleep.  I try to wrap my head around Amy and Leo, and why he has to die, and why she has to lose her best friend and husband, and their kids lose their daddy.

The other night I curled up around Alex, and I talked to her.  I told her everything that was going on in my head.  The whys.  The hows.  The what happens.

Then the M*A*S*H episode "Follies of the Living--Concerns of the Dead" came on.  It's about a soldier, Weston, who died but then doesn't go to an afterlife right away, but roams around the camp.  He goes to his best friend Hicks, who is recovering in post-op, and is talking to Father Mulcahy.  Hicks tells Mulcahy that he just doesn't know the point of anything if a good, decent guy like Weston can be killed.  Mulcahy replies, quoting and paraphrasing Job 38.

1 Then the LORD spoke to Job out of the storm. He said:
 2 “Who is this that obscures my plans
   with words without knowledge?
3 Brace yourself like a man;
   I will question you,
   and you shall answer me.
 4 “Where were you when I laid the earth’s foundation?
   Tell me, if you understand.

Now I'm not sure if there is a God/Goddess/some Divine Being, but this scene from M*A*S*H reminded me that maybe, just maybe, all of this makes sense.  All the suffering, all the death.  All the kindness, all the love.  It's part of a big picture.  Regardless of any divine plan, it reminds me also that there are questions that we just don't have answers to.

Amy and her family are really relying on their faith to help comfort them during this time.  Amy and Leo have always accepted that his cancer was apart of God's plan.  I'm glad they have that belief that works for them.  To them, there is no question that Leo is in Heaven with God and Jesus.  They also know they will be reunited with him upon their own deaths.

Since I lean towards the Buddhist side of things, I went to Google.  I found a funeral reading entitled "White Ashes" by Rennyo Shonin.  The full text is found here, but I am gonna quote a few lines:

"Now, if we look realistically at the nature of human life, we see that it is fleeting and unpredictable, illusive almost. Birth, life and death pass by in the twinkling of an eye. Thus we never hear of the human body lasting for ten thousand years...

"Thus our bodies may be radiant with health in the morning, but by evening they may be white ashes. If the right causes and conditions prevail, our two eyes are closed forever, our breathing ceases and our bodies lose the glow of life. Our relatives in great numbers and with great wealth can assemble, but they are powerless to change our situation. Even the rites and rituals of grief and mourning change nothing. All we can do is prepare the body for cremation; all that is left is white ashes."

This brought me great comfort.  I'm going to make a note of it for it to be read when I die.

As sadden as I am about Leo's passing, my heart aches for Amy and the kids.  I'm truly devastated.  I can't imagine what they're going through.  Or Leo's parents, losing their son.  Amy, who is the strongest person I know, will deal with whatever needs to be dealt with and provide the best for the kids.  I remember being at Amy's bridal shower and bachelorette party.  She was so in love with Leo and that never faded--it only got stronger.  I can't imagine the void she now has in her life.  It breaks my heart.  I just...there are no words.  She has a wonderful support system, which will help, but things will never be the same.  Things aren't as they should be.

Leo, wherever you are, in whatever form, I do sincerely hope you are at peace and free of suffering.  You were an amazing husband and father.  You had a wonderful sense of humor that you kept til the very end.  You inspired, and inspire, me--as sick as you were, you always gave of yourself and expected nothing in return.  You didn't dwell on your illness, but worked hard to adapt and thrive in the ways that you could.  We lost you way too soon.  However, your impact on all of us will never be forgotten.  You will live on in the hearts of those who loved you.  We all are better people for knowing you.  Thank you, Leo.  You will always be missed.

Via Google Images

Wednesday, December 28, 2011

Leo Passed Away

From Amy:

Leo John Hoepfner was called home early this morning to be with our Lord and Savior Jesus Christ. He fought an incredible battle and is a true warrior. He was one of the best men I have ever had the privilege of knowing, and I was even more blessed to have been able to call him my best friend and husband. I don't know why God always takes the good ones so early, but I guess He needs him more than we do right now. We should be so grateful to have such an amazing soul up in heaven rooting for us and watching over us...

Goodbye my pookie bear, my love. I will see you again someday, until then you will be sorely missed and I will think you of every day <3

The wake will be Friday night, and the funeral will be Saturday morning.

Thursday, December 22, 2011

Stuff

Yeah I've been a bad blogger.

Having Tabrez gone (he made it to India safe and sound and is having a great time) has thrown me off (and Alex).  Then the whole thing with Amy and Leo has been haunting me.  I've also been busy hanging out with friends.  And when I'm occupied with all that, I've been cleaning or sleeping.


Anyway, I haven't forgotten about this blog.  I still intend to detail my pelvic physical therapy. 

Just a lot of stuff on my mind of late.

Tuesday, December 20, 2011

Wednesday, December 14, 2011

Update on Leo

I received word the other day that Leo, originally given til Easter--maybe summer--now only has days to a couple weeks at most.

They're not sure he's going to make it to Christmas. 

From Amy:

"His liver has started to go into failure, and there absolutely nothing left to do. No more drugs or procedures. Since every body is different, it is very hard to pinpoint a timeline, but with his liver continuing to fail and his bilirubin climbing, we have anywhere from a couple days to a couple weeks. We are very much hoping that we get through Christmas, but seeing the New Year is pushing it.

"We are taking all of this in stride. Just a month ago we thought we had until spring, but this cancer business can be unpredictable and just plain shitty. We are cherishing every second that we have together, no one ever knows when it is their time. But some of us are fortunate enough to be able to make the most of limited time left on this earth with loved ones. We all should live like it is the last time we will ever see someone, because it truely might be. Don't forget to say I love you."


I saw him and Amy last night.  They stopped for a few hours in town on their way back from the Mayo Clinic.  It was a chance for everyone here to say goodbye. 

It was a nice little get together, all sorts of friends and family stopped by.  There was a lot of pizza and laughter.  We all knew why we were there, and that most of us would never see Leo alive again, but the love and togetherness that was shown I can't describe to you.  It was the perfect way to say goodbye.

Again, I'm still accepting donations thru ChipIn, found on the right top sidebar of my blog.

Friday, December 9, 2011

Still Here!

I apologize for not blogging for a while; I haven't been feeling the best so I have been sleeping.  A lot.  Then my boyfriend is leaving for India for a month on Sunday so when I have been awake we've been hanging out and getting him ready for his trip.

I intend to catch up on my blogging next week!