"There is the mud, and there is the lotus that grows out of the mud. We need the mud in order to make the lotus," Thich Nhat Hanh.

Saturday, November 12, 2011

Appointment Results

I am sorry that this post is overdue.

Tabrez and I got down to the Cities around 2 am Thursday morning.  My appointment was scheduled for 9:30 am, and we had to wait til Tabrez was done with a school program before we went down.

It snowed for most of the trip.

I was in too much pain after the drive to sleep.  I rested though, so that was something.

We got up, showered, and nommed, and got to the clinic at about 9:20.  When I checked in, the lady went, "Did you know your appointment was at 9?"

"No, I was told 9:30."

"It was for at 9.  I'm not sure we can get you in today."

"I was told 9:30.  If it was at 9, we would have been here, but I was told when I made the appointment it was for 9:30."  Tabrez backed me up, saying that he remembers what was jotted down on the notepad, and it was for 9:30.

We were then told that I needed to reschedule.

I then firmly said that I was told it was for 9:30, we got in town at 2 am, and that this was not my fault, it was whoever scheduled me, and so I was not going to reschedule.

The receptionist then had a few conversations and said that they would see me afterall.

I told her good, because I had no sleep due to pain and would have very likely started crying and it would have not been good.  Tabrez later told me that he would have made a scene as well.

As the nurse led me to do my vitals, she told me that my husband needed to wait in a room because of privacy rules.  I told her that he was only my boyfriend, and she asked if he was going to be my husband one day.  I said, "Well I'm working on it."  

Dr. H comes in and apologized for the mix-up.  We start talking and I tell him what has been going on.  He says because of everything he did during surgery and the Danazol, it can't be endo.

So then what is it?

He said the most likely reason is that my nerves down there have been so used to hurting for the past ten years, and so they're stuck in the "OMG IT HURTS" position. 

So what do we do about it?

He is sending me to the pain clinic up here.  He's going to be writing them a letter telling them what exactly is going on and what his opinion is, and that he thinks physical therapy might be helpful.  He would usually send me to the pain clinic there in the Cities but since we live four hours away we're gonna try the one up here.  Then he gave me an rx for more pain meds, and wished me luck because there wasn't much else he could do at this point for me.

Tabrez then took me nail polish shopping.  I got OPI's "I'm India Mood for Love" and "Warm and Fozzie," and China Glaze "Westside Warrior."  It cheered me up a bit.

Until Tabrez got sick.

By the time we bought the polish, Tabrez came down with the flu.  We had plans to visit a museum but we scratched that and decided to just get him home.  He was freezing.  He was miserable.  He only threw up once, and was able to wait til we made it to a rest stop.  I stopped and got DayQuil for him.

It was not a pleasant car ride.

Then, in the middle of my brooding Tom Petty album, my iPod died and I couldn't find the cord to charge it. 

When we got home I had to get Tabrez all taken care of.  His temp was 102.  He fell asleep and then I curled around him and got a few hours of much needed sleep.  Eli came home later that evening with a get well balloon and treats and stuffed animals for us.  I hugged him and told him that he has no idea how much I needed that.

Friday came and I wasn't feeling the greatest.  Bad headache and tummy was oozily.  Other than that, and the pain, it hasn't been too bad.  Tabrez keeps improving too, and is grateful for me taking care of him.  Which I do very well, actually.  As today has gone on, I've been feeling better.  We've been just resting and watching Star Trek Voyager.  I made a good dinner tonight, which was a nice change from soup.

I haven't really processed my appointment yet, been too busy with Tabrez's being sick and then my not feeling so great either. 

So that's the story with my appointment.  I'm sure I'll be blogging more about it as it all sinks in.

3 thoughts:

  1. I'm sorry your appointment didn't go as well as you'd wanted. The good news is that I have experience with neural-inhibitors after I had some nerves that were stuck in the "I'm in pain" position. It is addictive so I had to ease myself into it and then, about a year or so later, ease myself back out. Getting accustomed to it was very odd indeed but so worth it because, in the end, I am not in pain needlessly now. If you find yourself given this stuff and want to chat - please do give me a shout. I'm not a doctor but will do my best to help.
    Foxy

    ReplyDelete
  2. Okay you are inspiring me to get out of my depressive funk for a bit today. Its so easy to stay where the pain dwells mentally and physically. I guess I'll get away from the puter for a bit and go try out a new recipe. Hope you are both feeling better soon.

    ReplyDelete
  3. I'm sorry that the appointment didn't go as planned. I imagine that isn't what you planned. I hate when you are passed off to someone else. I know how frustrating that can be. *hugs*

    ReplyDelete

Hailing Frequencies Open!